Four year old Katie Webb has a smile that will melt your heart. Most often you will see her wearing her favorite shades of pink or blue, and if Katie had her way, she would eat chicken tetrazzini every day! She was born with a cleft palate and an extremely rare genetic disorder that affects the pituitary gland, important for heart rate, thyroid, blood pressure, growth hormones and more. At the time of her birth, Katie was only the fourth person in the world to be diagnosed with this disorder. Placed on life support as soon as she was born, Katie spent more than 100 days of her first year at Levine Children’s Hospital. Her first home was in the Neonatal Intensive Care Nursery, where new diagnoses were brought to the forefront on a daily basis. Since birth, Katie has undergone four major surgeries and countless hospitalizations.
The Webbs have received excellent care at Levine Children’s Hospital, where several specialists follow Katie closely during all of her visits. She has surpassed any initial limitations her doctors felt might hinder her. Your donations to Children’s Miracle Network are crucial to enhancing the care provided in our intensive care and specialty centers, and they make a tremendous impact on the lives of children like Katie.
